Life after cancer: Top questions survivors ask

Get answers to common questions cancer survivors ask about recovery, recurrence, emotional health and how to live well. 

By Kathleen N. Mueller, MD, FAAFP, System Medical Director for Cancer Survivorship and Integrative Medicine, Nuvance Health, part of Northwell Health 

When cancer treatment ends, many people expect to feel nothing but relief. But for many survivors, the end of treatment brings a wave of new emotions and questions, like: “I thought I'd feel better by now” or “I didn’t expect this part to be so hard.” 

If you’ve had these thoughts, you’re not alone. That’s why we created the Live Well program: to support survivors physically, emotionally and practically as they transition into life beyond cancer treatment. 

Here are some of the top questions cancer survivors ask — and what you should know. 

Why don’t I feel like myself after cancer?

Active cancer treatment may be over, but your body and brain are still healing. You may experience fatigue, body aches, brain fog and emotional changes. These effects can last for months or even years. To feel more like yourself again, try: 

• Prioritizing rest and pacing yourself throughout the day. 

• Light physical activity like walking or stretching to rebuild energy. 

• Staying connected to others. Isolation can amplify emotional struggles. 

• Journaling or speaking to a therapist about your experience. 

Will I ever stop worrying about cancer coming back?

It’s normal to worry about cancer coming back. The fear of recurrence may be stronger around follow-up scans or when symptoms appear. The fear may never go away completely, but try the following things to help manage it: 

• Acknowledge fear rather than pushing it away. 

• Practice mindfulness or breathing exercises to manage anxiety. 

• Focus on what you can control — healthy habits and regular checkups. 

• Write down your concerns and bring them to your next doctor’s appointment. 

Related content: Adjusting to life after cancer treatment 

How often will I need follow-up scans after cancer treatments end?

The frequency of follow-up imaging, like CT or PET scans, depends on the type of cancer, the stage and treatment received. Generally, you may have scans every three to six months in the first few years, then once a year. Keep a personal calendar with upcoming scans and appointments, and don’t hesitate to ask your healthcare provider what to expect long-term. 

Who manages my healthcare now — my oncologist or my primary doctor?

After active cancer treatment, care is usually shared. To stay organized: 

• Keep a printed or digital copy of your cancer survivorship care plan. 

• Schedule routine checkups with both your oncology team and primary care provider. 

• Update all your doctors with any new symptoms or changes in your health. 

Related content: Where to get help during cancer treatment and survivorship 

Why am I still so tired after active cancer treatment?

Cancer-related fatigue is different from normal tiredness. It can persist long after treatment ends. To manage it: 

• Keep a fatigue journal to identify patterns and triggers. 

• Break tasks into smaller steps and take frequent breaks. 

• Try gentle exercises like yoga or tai chi to rebuild endurance. 

• Eat regularly and hydrate well to support energy levels. 

What should I eat after active cancer treatment ends?

Nutrition plays a key role in recovering from cancer. General guidelines include: 

• Focus on plant-based foods like fruits, vegetables, legumes and whole grains. 

• Limit processed foods, red meats and added sugars. 

• Drink water throughout the day to stay hydrated. 

• Try meal prepping or batch cooking to make healthy eating easier. 

Related content: Nutrition tips for cancer survivors 

Can I exercise safely after having cancer?

Yes, movement is one of the most beneficial habits you can adopt post-cancer treatment. Start with: 

• 10- to 20-minute walks, and increase as your strength improves. Aim for 150 minutes of moderate exercise weekly, as tolerated. 

• Low-impact activities like biking, swimming or walking. 

• Stretching and balance exercises to prevent falls. 

How do I manage lingering side effects from cancer treatments?

You may experience nerve pain, hot flashes, digestive issues or memory problems from cancer treatments, like chemotherapy. Speak with your doctor about ways to manage side effects, and consider the following: 

• If memory is an issue, use a pill organizer or set alerts on your phone to remind you about things you need to do. 

• Wear comfortable shoes and avoid tight socks if you have neuropathy. 

• Stay cool and dress in layers for hot flashes. 

• Talk with your doctor about complementary medicine to manage side effects, like acupuncture and hypnotherapy for hot flashes or pain. 

• Keep a symptom log to track what worsens or improves your side effects. 

What about my mental health post-cancer?

Emotional recovery is just as important as physical recovery from cancer. If you feel anxious, down or overwhelmed: 

• Speak to a licensed counselor or therapist. 

• Join a cancer survivor support group — online or in person. 

• Keep a gratitude journal or try creative outlets like art or music. 

• Prioritize activities that bring you joy and peace. 

Related content: Top 4 ways to manage mental health after cancer 

How do I get back to work after cancer treatments end?

Returning to normal life can be exciting but also stressful. Here are ways to ease into a work routine after cancer treatment: 

• Talk with your employer about accommodations you may need. 

• Start part-time or adjust your schedule gradually. 

• Keep notes or use planning tools to stay organized. 

• Practice self-compassion — you may not be at full speed right away and that’s OK. 

What if I need help with bills or insurance to pay for cancer treatments?

Financial concerns are very real among cancer survivors, whether the treatments themselves or from having to take time off from work. At Nuvance Health, we have dedicated social workers to help you navigate financial challenges and find resources and support to ease the burden.  

You can also try: 

• Calling your insurance provider to ask about financial navigators. 

• Looking into local and national grants for cancer survivors. 

• Contacting nonprofit organizations like the American Cancer Society for resources. 

• Exploring if you qualify for SSDI (Social Security Disability Insurance). 

What should I keep track of in my medical records after a cancer diagnosis?

Thankfully, most health systems have electronic medical records (EMRs) and patient portals. At Nuvance Health, you can access your medical information in a patient portal. If you prefer hardcopies, essential documents include: 

• Diagnosis summary and treatment history 

• Pathology and lab reports 

• Imaging and scan results 

• A current list of medications 

• Your survivorship care plan 

Keep these in a folder you can access and share easily. 

How can I connect with others who understand what cancer is like?

While everyone has a unique experience with cancer, it can help to talk with others who may have similar experiences. You don’t have to go through survivorship alone! 

• Join peer mentoring or survivor support groups. 

• Attend survivorship events or workshops. 

• Volunteer or get involved with cancer organizations. 

• Connect on forums like American Cancer Society’s Cancer Survivors Network: csn.cancer.org 

The Cancer Survivorship Live Well Program at Nuvance Health

Our Live Well Cancer Survivorship Program provides personalized support to help you thrive after treatment. We focus on: 

• Non-drug approaches like massage, acupuncture and integrative therapies. 

• Personalized guidance on nutrition and movement. 

• Access to mental health services and support groups. 

• Practical tools to manage long-term effects and promote wellness. 

Surviving cancer is more than just living — it’s about living well. We will help you build a toolbox, and you can take out the tools you need, whether certain foods, a movement program or pain management therapies. 

Request an appointment with Dr. Kathleen Mueller, System Medical Director for Cancer Survivorship and Integrative Medicine, Nuvance Health, part of Northwell Health. 

The bottom line: Life after cancer brings new questions, challenges and opportunities. It’s normal to feel uncertain, tired or overwhelmed. Please know support is available. Prioritizing your physical recovery, emotional well-being and long-term health can help you regain control and confidence. With the right tools and resources, you can move forward and live well.